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The Hidden Reason for Your Mystery Symptoms: Could It Be craniocervical instability (CCI)?
People with Ehlers-Danlos syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) often live with headaches, dizziness, fatigue, or brain fog that seem unrelated. An overlooked factor may be craniocervical instability (CCI) — looseness in the ligaments where the skull meets the spine. In connective-tissue disorders, this instability can irritate the brainstem, disrupt blood flow, and mimic other conditions like migraine, fibromyalgia or ADHD-like symptoms.

Ines Illipse
Sep 15, 20256 min read


Post-Exertional Malaise (PEM): What People With Hypermobility and Neurodivergence Need to Know
Have you ever done something small — like going for a short walk, having a long conversation, or even reading for a while — and then felt...
Maya Illipse
Sep 1, 20256 min read


Understanding Dyssynergic Defecation: A Guide for Managing Bowel Health
If you’ve ever sat on the toilet for far too long, wondering why your body just won’t cooperate, you’re not alone. Many people assume constipation is always about diet, dehydration, or stress. While those factors can play a role, there’s another cause that’s surprisingly common, especially in people with hypermobility, neurodivergence (such as ADHD or autism), or mast cell activation syndrome (MCAS). It’s called dyssynergic defecation. The term may sound intimidating, but the
Maya Illipse
Aug 18, 20254 min read


🧬 The MTHFR Gene: What It Is, Why It Matters for Hypermobility and Neurodivergence
At ParaMotion, we’re passionate about bridging the gap between science, movement, and the lived experience of people with hypermobility and neurodivergence. That means looking at emerging research and asking meaningful questions, not just about what we experience, but why. One piece of this puzzle that’s gaining attention in both clinical and patient communities is the MTHFR gene. While it’s often surrounded by confusion or oversimplification, understanding how this gene work
Maya Illipse
Jul 21, 20255 min read


Fibromyalgia, Hypermobility, and Neurodivergence: What Your Doctor Missed
A fibromyalgia diagnosis should never be the final stop on your medical journey. For many in our community, this label is simply a description of widespread pain, hiding underlying hypermobility, a neurodivergent nervous system, or both. If your doctor handed you this checklist diagnosis without evaluating your joint laxity or your neurotype, it is time to dig deeper. Explore the biological links between loose joints, sensitive minds, and the root causes of chronic pain.
Maya Illipse
Jul 7, 202510 min read


The Overlooked Link Between EDS and Testosterone: What You Need to Know
Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that affects collagen, leading to joint instability, chronic pain, and autonomic dysfunction . While many factors contribute to symptom severity, hormonal imbalances, particularly low testosterone, can play a significant role in worsening EDS symptoms . Testosterone is essential for muscle strength, connective tissue support, and autonomic function , making it a critical factor in managing EDS symptoms. However
Maya Illipse
May 12, 20254 min read


EDS and Gut Health: The Role of the Microbiome
If you live with Ehlers-Danlos Syndrome (EDS), gut issues aren’t just an occasional bother—they’re a daily struggle. Research shows that...

Ines Illipse
Mar 23, 20254 min read


Living with POTS & Hypermobility: A Guide to Understanding, and Managing
Postural Orthostatic Tachycardia Syndrome (POTS) is a complex autonomic condition that often overlaps with hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). While rapid heart rate is a hallmark of POTS, it is often a compensatory response rather than the root problem. This blog explores symptoms, common misconceptions, and updated management approaches that focus on circulation, nervous system support, and individualized care.
Maya Illipse
Mar 12, 20254 min read


Understanding Mast Cell Activation Syndrome (MCAS): Causes, Symptoms, and Treatment
Mast Cell Activation Syndrome (MCAS) is a complex condition that often overlaps with Ehlers-Danlos syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), and other chronic illnesses. Caused by excessive mast cell mediator release, MCAS can affect multiple body systems and is frequently misunderstood or misdiagnosed. This blog explores symptoms, triggers, common misdiagnoses, and updated, individualized approaches to management.

Ines Illipse
Feb 27, 20256 min read


Understanding Tethered Cord Syndrome and Its Impact on EDS/HSD Patients
If you’re familiar with Ehlers-Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD), you know these conditions often come with...
Maya Illipse
Jan 21, 20254 min read


Navigating Thyroid Health in EDS/HSD: Understanding the Overlap and Misdiagnoses
January is Thyroid Awareness Month , a time to spotlight the critical role of the thyroid gland and its profound impact on the body. For...

Ines Illipse
Jan 5, 20256 min read


Understanding Binocular Vision Dysfunction in Hypermobility and Neurodiversity
People with Ehlers-Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) often experience Binocular Vision Dysfunction (BVD), causing double vision, dizziness, headaches, and balance issues. Due to connective tissue laxity and neurological effects, the eyes may struggle to align properly. Recognizing and treating BVD through vision therapy or prism lenses can greatly improve daily function and quality of life.

Ines Illipse
Dec 6, 20245 min read


Navigating the Layers of Hypermobility Pain: A Comprehensive Blueprint for hEDS and HSD
Pain in hEDS and HSD changes constantly because it comes from different sources. To manage it effectively, you must understand the different types of pain you are experiencing, whether it is physical tissue strain, nerve irritation, or nervous system sensitization. This blueprint breaks down exactly how these distinct pain types present in hypermobile bodies, how systemic conditions amplify them, and the concrete steps you can take using nutrition and regulation to deal with

Ines Illipse
Nov 26, 20246 min read


Living with hypermobility Flare-Ups: Understanding, Coping, and Moving Forward
Flare-ups are one of the most challenging aspects of living with hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). While they cannot always be prevented, understanding why they happen, recognising your personal triggers, and knowing how to respond can make them feel less overwhelming. Learn how to identify common contributors and discover practical ways to support your body before, during, and after a flare.
Maya Illipse
Nov 14, 20245 min read


PMDD, EDS/HSD, and Their Comorbidities: Exploring the Histamine Connection
Hey there! If you’re reading this, you’re probably all too familiar with the challenging mix of PMDD (Premenstrual Dysphoric Disorder) and EDS/HSD (Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder). But did you know that people with EDS/HSD are often dealing with a whole constellation of related conditions? Along with PMDD, it’s common to find autism, ADHD, and MCAS (Mast Cell Activation Syndrome) in this community. Each of these adds a unique layer of complexity. One
Maya Illipse
Oct 31, 20247 min read
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