
As the warm days of summer give way to cooler, shorter days, many people with chronic conditions notice a shift in how they feel. For those with Ehlers-Danlos syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and their many related comorbidities, the transition into fall—often called the "October Slide"—can bring about new or worsened symptoms. This seasonal fluctuation can seem like the body reacting to every change in temperature, sunlight, and air pressure. For people with EDS/HSD, who often already struggle with autonomic, joint, and immune system irregularities, it can feel like an uphill battle.
In this post, we’ll explore why the October Slide affects people with EDS/HSD so acutely, covering specific symptoms that may flare up and strategies for managing them as the weather shifts.
Understanding the October Slide: Why Does Seasonal Change Matter?
The October Slide is driven by three primary environmental shifts that occur in autumn:
Decreased Daylight and Sunlight Exposure: Reduced daylight affects circadian rhythms, mood, and immune response, which can contribute to increased fatigue, mood changes, and even pain.
Temperature Fluctuations: People with EDS/HSD are often sensitive to temperature changes and may struggle with thermoregulation, making the body’s ability to adapt more challenging.
Barometric Pressure Changes: Pressure fluctuations can lead to increased pain and stiffness, especially around joints already prone to instability in people with connective tissue disorders.
Additional Challenges with Cold-Weather Clothing: For those with EDS/HSD, adapting to cooler weather doesn’t just mean adjusting to lower temperatures; it often requires layering on heavier clothing, which can exacerbate symptoms. Heavier or more restrictive layers may affect proprioception—our body's sense of position—by making it harder to feel and control movements, leading to more fatigue, increased risk of falls, and joint strain. Additionally, weightier layers can add pressure and friction, increasing discomfort, especially for those with sensitive skin or joint pain.
Comorbid Conditions and How They’re Affected by the October Slide
EDS/HSD is often accompanied by other conditions—such as Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and gastrointestinal or mental health disorders—which can become more symptomatic with seasonal changes.
1. Postural Orthostatic Tachycardia Syndrome (POTS)
Temperature Sensitivity: POTS symptoms can worsen with temperature shifts, as blood vessels may have a harder time adjusting to changes, impacting blood flow and leading to dizziness, fainting, and fatigue.
Hydration and Electrolyte Balance: Cooler, drier air can increase dehydration risks, essential for people with POTS to manage. Staying hydrated with adequate electrolytes is critical.
2. Mast Cell Activation Syndrome (MCAS)
Increased Histamine Response: Cooler weather and increased time indoors can trigger MCAS symptoms due to changes in indoor allergens, dust, and even diet (many fall foods are high in histamine). Seasonal colds and viruses, more common in fall, can also trigger histamine reactions.
Temperature-Induced Flares: Cold temperatures can directly activate mast cells, making symptoms like itching, flushing, sinusitis, and digestive issues more common in fall.
3. Joint Pain and Instability
Increased Stiffness and Pain: Lower barometric pressure and colder weather can make joints stiffer, leading to greater instability and pain for those with EDS/HSD. Connective tissue tends to feel stiffer in colder weather, and this can make movements painful, impacting daily function.
Physical Limitations: As outdoor activities decrease, people may find their flexibility and strength affected, which can contribute to joint pain.
4. Mental Health: Depression and Anxiety
Seasonal Affective Disorder (SAD): The reduced sunlight and shorter days can exacerbate mood-related symptoms like depression and anxiety. EDS/HSD individuals may be more prone to SAD, which can in turn worsen physical symptoms, creating a cycle of discomfort and emotional distress.
Stress Impact: Stress and fatigue levels often rise with worsening physical symptoms, which can intensify both physical and mental health challenges in a feedback loop.
Managing Symptoms During the October Slide
Preparing for and adapting to seasonal changes can significantly reduce symptom severity during this transition.
1. Temperature Regulation and Dressing in Layers
Cold-weather clothing is essential but can add unwanted strain. Opt for lightweight, insulating layers or adaptive clothing designed for flexibility. Materials like wool or specialized synthetic fabrics can keep you warm without excess bulk, which reduces strain on joints and allows better movement and proprioception.
For POTS management, keep socks or compression stockings handy, as these can help maintain blood flow.
2. Hydration and Nutrition
Hydration: Increase water intake and consider electrolyte supplements, particularly if dizziness, headaches, or fatigue increase.
Low-Histamine Diet: If MCAS is a concern, adjusting to a low-histamine diet can help. Foods that are fresh, low in preservatives, and low in histamine may help prevent symptom flares. Keep in mind that any diet shouldn't be followed for more than 4-6 weeks.
Vitamin D: Check vitamin D levels, as reduced sunlight can lower levels, which are crucial for bone and joint health.
3. Gentle Movement Therapy
Physical activity and stress relief are both crucial to symptom management, but with EDS/HSD, it’s essential to avoid overexertion. At ParaMotion, we believe that gentle movement can help ease pain, improve mental clarity, and relieve stress which can help keep symptoms in check. In our program and course we offer:
EDS-friendly dynamic stretching: Helps relieve muscle tension without straining your joints
Deep breathing: A simple, quick way to reduce stress and calm your nervous system, and also your mast cells.
Slow yoga: this gentle practice can be very effective
On particularly tough days, even a few deep breaths or some light stretching can make a difference. Listen to your body, and don’t push yourself beyond what feels manageable.
5. Monitoring Symptoms and Adjusting Routines
Keep a symptom journal to note any patterns related to temperature or weather changes. Being able to predict symptom flares can help with planning around high-stress periods.
Plan Rest Periods: Be mindful of needing extra rest during this time, particularly as activity may become more limited, and energy levels may vary.
Conclusion
The October Slide doesn’t have to catch you off guard each year. Being prepared and adjusting your routines for this seasonal shift can help reduce symptom severity and give you greater control over your health. As the days shorten and the temperature drops, paying attention to the body’s needs and making small adjustments can create a positive impact on managing EDS/HSD symptoms, POTS, MCAS, and other comorbidities.
Remember, with the right strategies and support, you can weather these seasonal changes more comfortably and confidently.
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